Rare Disease Day
My fullest account of surviving two strokes and EGPA, finding a treatment that gave me my life back, and turning pain into faith, resilience, and advocacy.
Writing / Blog
Nine years of writing. Every post lives here.
I began this blog in a hospital room because I wanted to show the world what I could do. These posts hold the hard nights, joyful surprises, faith, work, disability, and purpose that followed.
15 posts · 2016–2025 · about 70 minutes of reading
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Every result opens on Walk With Bravery. The old WordPress site remains linked only as a historical source.
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All 15 posts
2025
2023
Neuroplasticity and the Potentially Detrimental Effects of a Pain Chart
What pain scoring can teach a brain to repeat, and what I learned about attention, distraction, and building a life beyond pain.
2021
Reconnecting in a Disconnected Time
A night of friendship that reminded me what it means to feel seen, understood, and fully yourself.
The Job of Finding Purpose
How one chance at Pizzability and Brewability gave me three things I had been searching for: hope, normalcy, and purpose.
The Best Comes Through the Worst of Situations
What hardship taught me about kindness, invisible battles, faith, community, and looking for what can still be gained.
2019
Invisible in a Visual World
A personal call to believe people whose disabilities cannot be seen, and to recognize the ability hidden behind assumptions.
2018
Neuroplasticity
How Mayo Clinic's Pain Rehabilitation Center helped me move from merely existing toward living again.
2017
The Power of Positive Thinking
An honest reflection on pain, hope, faith, and why joy can still come in the morning.
Best Prom EVER!!!
The prom I once missed because of the hospital became a night full of friendship, laughter, roses, and joy.
Pain
A raw account of chronic pain, failed treatments, hard questions about God, and choosing to keep fighting anyway.
Contains a heavy section—there is a note at the top
2016
Fundamentals of Caring
The difference between pity and real care: ask, listen, observe, help, and ask again.
Actions Speak Louder Than Words
What hospital discharge promises taught me about follow-through, disappointment, honesty, and faith.
Being Small in a Big World
Growing up with Russell-Silver syndrome, living through bullying, finding my voice, and learning that difference belongs.
First Singing Video
A duet with Dr. Bloom, and one of the first creative things I ever shared through Walk With Bravery.
First Blog Post
Why I started writing: to share my world, help someone understand, and show what people never expected me to do.
July 13, 2016
“I think sometimes people don't think they can learn anything from a kid like me. I'm going to prove them wrong.”Read the first post View the historical WordPress archive